Quality of life in children with chronic disease in Malang city assessed using pediatric quality of life inventoryTM
Main Article Content
Keywords
children’s quality of life, PedsQLTM, chronic disease
Abstract
Introduction: A chronic disease is known to be a condition that affects daily function and daily activity which tends to cause someone to be hospitalized. A chronic disease in children triggers several changes in physical, social, emotional, and educational aspects and it can affect the quality of life and development of the child. The purpose of this study is to determine the quality of life of children with chronic disease in Malang city using PedsQLTM.
Method: This study is an analytic observational study using a cross-sectional design. Data collection was using purposive (non-probability) sampling with a total sample of 82 respondents. Data collection was carried out using a generic PedsQLTM questionnaire version 4.0 with a google form. Data analysis was performed using Univariate analysis (Descriptive Respondents) and bivariate analysis (Correlation Analysis using Chi-Square).
Results: The results showed that the factors that are significantly associated with the quality of life of children are the type of disease and the child's nutritional status (p-value= 0.005; 0.009< Level of Significance = 0.05) while other factors such as age, gender, parents' knowledge, and education background, duration of disease, parents' social and economic condition and several children are not significantly associated with the quality of life.
Conclusion: The factors that are significantly associated with the quality of life of children were the type of disease and nutritional status.
References
2. Boyse K. Children with Chronic Conditions. 2012. http://pediatrics.aapublications.org./cgi/content/abstract/87/6/884.
3. Varni J, Limbers C, Sorensen L, et al. PedsQLTM Cognitive Functioning Scale in Pediatric Liver Transplant Recipients: Feasibility, Reliability, and Validity. 2011;20(6):913–921.
4. Sukandar E. Neurologi Klinik. Bandung: Pusat Informasi Ilmiah (PII) Bagian Ilmu Penyakit Dalam Fakultas Kedokteran UNPAD; 2010.
5. Perkumpulan Keluarga Berencana Indonesia. Data Mengenai Tingkat Pengetahuan Kesehatan Reproduksi di Jawa Tengah. 2010.
6. Nofitri N. Gambaran Kualitas Hidup Penduduk Dewasa di Jakarta. 2009.
7. Prawirohardjo S. Buku Acuan Nasional Pelayanan Kesehatan Maternal dan Neonatal. Jakarta: PT Bina Pustaka; 2010.
8. Sintiani I, Eryani R. Hubungan Antara Peran Sebaya dengan Perilaku Delikuensi pada Siswa SMKN Z Bandung. Pros Psikol Spes. 2016;2(2):577–583.
9. Suryono A. Hubungan Dukungan Keluarga dengan Kualitas Hidup Anak yang Menderita Penyakit Kronik di PKU Muhammadiyah Yogyakarta. 2017.
10. Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsqlTM In Pediatric Cancer: Reliability And Validity Of The Pediatric Quality Of Life InventoryTM Generic Core Scales, Multidimensional Fatigue Scale, And Cancer Module. Cancer. 2012;94(7):2092–2106. doi:10.1002/cncr.10427
11. IDAI. Penilaian Kualitas Hidup Anak. http://www.idai.or.id/artikel/seputar-kesehatan-anak/penilaian-kualitas hidup -anak-aspek-penting-yang-sering-terlewatkan. 2015.
12. Mariani D. Analisis Faktor yang Mempengaruhi Kualitas Hidup Anak Thalasemia Beta Mayor di RSU Kota Tasikmalaya dan Ciamis. 2011.
13. Miranty S. Hubungan Asupan Makanan dan Status Gizi terhadap Kualitas hidup Penderita Lupus Eritematosus Sistemik. 2015.
14. Rumahorbo R. Hubungan antara Derajat Rinitis Alergika dengan Kualitas Hidup Anak dengan Rinitis Alergika. 2013.
15. Keshavarzi S, Ahmadi S, Lankarani K. The Impact of Depression and Malnutrition on Health Related Quaslity of Life Among the Elderly Iranians. Glob J Health Sci. 2015;7(3):161–170.
16. Istutiningrum D. Hubungan Gizi dengan Kualitas Hidup pada Pasien Penyakit Degeneratif Pasca Rawat Inap Rumah Sakit. 2015.